WHO ARE WE?
Here at MileS For MS headquarters, we strive to raise awareness and money for the MS Society. We have all, in one way or another, been affected by Multiple Sclerosis (MS).
We fully support the work and research that the MS Society do in the hope that a cure is found and that they can one day eradicate this horrible illness.
I have been involved in the organisation of many fundraising events for the MS Society.
Having watched my Aunt live with a progressive form of MS for over 26 years and the effect it had on her and on our family, I have made it my goal to always raise much needed cash and awareness for the MS Society.
Leaving my entire family devastated, my beautiful Aunt passed away suddenly in May 2017. It has made me more determined to do anything in my power to help the MS Society find a cure!
Come and join us, we always have fun and you will be helping to make such a difference.
I too have been involved in many fundraising events for the MS Society UK in recent years - this is a cause that is very dear to my heart.
Having watched my lovely Mum Karen suffer at the hands of this debilitating condition for over 26 years with a severe and progressive form of Multiple Sclerosis, I am keen to see the end of it, and in the mean time I want to help to ensure others suffering with MS can continue to get the help and support they need.
Diagnosed, when she was 29 (I was only 14 at the time with my two younger brothers only 8 and 5), Mum deteriorated in front of our eyes. She soon lost her ability to write, walk, feed herself, voluntarily move her upper body, speak, swallow, go to the toilet and see clearly. After trialing various drugs, undergoing two intensive brain operations, losing her bladder and later, needing to be fed via tube she eventually became bed-ridden for the last 12 years of her life.
After her long struggle, with very little quality of life during what should have been her prime years, Mum passed away very suddenly on 15th May 2017, leaving me and my family heartbroken.
This is for you now Mum! As I attempt to run 26.2 miles across London on 22nd April 2018 in the London Marathon, I'll be thinking of you all the way and know you'll be there in spirit with me, dragging me across that finish line. As I 'walk the walk' and spend hours on my phone and laptop organising our '14 Mile Slog' with my fellow fundraising team mates and walkers, I'll know you'll be proud that I am doing all I can to help others who still suffer, as you did for so many years.
Here's to raising lots of money for a charity that very often sits 'under the radar'!
I can’t remember a time that hasn’t been affected by MS, for as long as I can remember it has always been there!
My mother was diagnosed when I was very young, I was about 7 or 8 years old (my sister Georgina was 14 and my younger brother was just 5) so a lot of the initial implications her diagnosis brought were kept from me so I could carry on being the charming well behaved 7/8 year old that I was, but It quickly became a normal part of life to see my mum walking with a stick, mainly because it never stopped her from being the mum she had always been, doing the things she always had. But mum’s MS was a very severe and progressive form of MS and she soon became wheelchair bound which prevented her from doing some of those things, but not all, you could still have a cuddle, which is one of my more prominent memories I have of mum.
Mum continued to deteriorate. She soon lost her ability to write, walk at all, feed herself, speak, swallow, go to the toilet and see clearly. She underwent two intensive brain operations, lost her bladder and later, needing to be fed via tube she eventually became bed-ridden for the last 12 years of her life. Without even realising it we had all become carers for our mum but again, it felt normal, it’s what you do, I knew nothing else.
Sadly mum passed away on 15th May 2017 after a 26 year fight with MS, leaving our family heartbroken.
MS had dictated the type of relationship I was to have with my mum and I soon realised what it really had taken from me, I lost the chance to have the relationship that many sons have with their mum, I never got a chance to take her for lunch or dinner, I couldn’t call her when I had a problem and didn’t know what to do. Did she agree with the path I had taken? What advice would she have given me? Her MS took so much from us both.
This is one of the many reasaons why I have decided to do as much as I can to help raise the much needed awareness and funds the MS Society UK rely on in order to help people like my mum and hopefully one day find a cure.
My aim is to raise money and awareness of a debilitating disease that affects so many people, young and old, in so many different ways.
MS has been within our family for as long as I can remember. Firstly with my Nan, and then my dad was diagnosed 8 years ago.
Sport has always been my dad’s life. His first love was cricket and when he could no longer play cricket he took up golf. Recently though, dad had to stop playing golf due to MS. His balance makes it a struggle to even walk, let alone play golf.
Living so far away I cannot offer the day to day support I would like to for my parents, which is why I feel the MS Society is such a fantastic organisation. They provide support to my dad and to my mum, who is my dad’s carer, as they do with so many others who are impacted by MS. The main thing the group offers is friendship and lots of support, as no two people have the same symptoms. The help these wonderful groups offer is vital for the people affected by this illness, and it would not be possible without the kindness and generosity of those people who give up their time to volunteer.
Anything you can give will be amazing, thank you for taking the time to read this and for your support.